{"links": [{"rel": "self", "href": "https://nihr.opendatasoft.com/api/v2/catalog/datasets/palliative-and-end-of-life-care"}, {"rel": "datasets", "href": "https://nihr.opendatasoft.com/api/v2/catalog/datasets"}, {"rel": "records", "href": "https://nihr.opendatasoft.com/api/v2/catalog/datasets/palliative-and-end-of-life-care/records"}, {"rel": "exports", "href": "https://nihr.opendatasoft.com/api/v2/catalog/datasets/palliative-and-end-of-life-care/exports"}, {"rel": "facets", "href": "https://nihr.opendatasoft.com/api/v2/catalog/datasets/palliative-and-end-of-life-care/facets"}, {"rel": "attachments", "href": "https://nihr.opendatasoft.com/api/v2/catalog/datasets/palliative-and-end-of-life-care/attachments"}], "dataset": {"visibility": "domain", "dataset_id": "palliative-and-end-of-life-care", "dataset_uid": "da_qfhndn", "has_records": true, "features": ["timeserie", "analyze"], "attachments": [{"id": "p_eol_dataset_xlsx", "title": "P&EoL Dataset.xlsx", "mimetype": "application/vnd.openxmlformats-officedocument.spreadsheetml.sheet", "url": "https://nihr.opendatasoft.com/api/v2/catalog/datasets/palliative-and-end-of-life-care/attachments/p_eol_dataset_xlsx"}], "alternative_exports": [], "data_visible": true, "fields": [{"name": "award_ref", "description": "A unique identifier for an application, study or award. The identifier is maintained through and beyond the full lifetime of the project / award.", "annotations": {}, "label": "\ufeffAward_Reference", "type": "text"}, {"name": "title", "description": "The title of research being carried out under the award.", "annotations": {}, "label": "Title", "type": "text"}, {"name": "abstract", "description": "Scientific abstract or, if not available, then expert summary.", "annotations": {}, "label": "Abstract", "type": "text"}, {"name": "summaryofresearch_lay_summary", "description": "A plain English summary is a brief summary that has been written for members of the public and an interested audience rather than specialists. It should be written clearly and simply, without jargon and with an explanation of any technical terms that have to be included.", "annotations": {}, "label": "Summary_of_Research / Lay_Summary", "type": "text"}, {"name": "lead_applicant", "description": "Full name of the individual(s) with the role of 'Award Holder' / 'Chief Investigator'.", "annotations": {}, "label": "Lead_Applicant", "type": "text"}, {"name": "organisation", "description": "The head office of the funded organisation.", "annotations": {}, "label": "Organisation", "type": "text"}, {"name": "award_amount", "description": "The original award amount / initial contract value which may be different from the Award_Amount in the event that there have been variations to contract prior to the extraction. ", "annotations": {}, "label": "Award_Amount", "type": "text"}, {"name": "start_date", "description": "Latest contracted project start date at the time of extraction that includes any variation.", "annotations": {}, "label": "Start_Date", "type": "date"}, {"name": "end_date", "description": "The end date of the Project.", "annotations": {}, "label": "End_Date", "type": "date"}, {"name": "hospital", "description": "The setting where the research was conducted.", "annotations": {}, "label": "HOSPITAL", "type": "text"}, {"name": "hospice", "description": "The setting where the research was conducted.", "annotations": {}, "label": "HOSPICE", "type": "text"}, {"name": "home", "description": "The setting where the research was conducted.", "annotations": {}, "label": "HOME", "type": "text"}, {"name": "care_home", "description": "The setting where the research was conducted.", "annotations": {}, "label": "CARE HOME", "type": "text"}, {"name": "primary_care", "description": "The setting where the research was conducted.", "annotations": {}, "label": "PRIMARY CARE", "type": "text"}, {"name": "social_care", "description": "The setting where the research was conducted.", "annotations": {}, "label": "SOCIAL CARE", "type": "text"}, {"name": "community_not_mentioned", "description": "The setting where the research was conducted.", "annotations": {}, "label": "COMMUNITY (not mentioned)", "type": "text"}, {"name": "transitions", "description": "The setting where the research was conducted.", "annotations": {}, "label": "TRANSITIONS", "type": "text"}, {"name": "other", "description": "The setting where the research was conducted.", "annotations": {}, "label": "OTHER", "type": "text"}, {"name": "not_mentioned", "description": "The setting where the research was conducted.", "annotations": {}, "label": "NOT MENTIONED", "type": "text"}, {"name": "other_mentioned", "description": "The setting where the research was conducted.", "annotations": {}, "label": "OTHER MENTIONED", "type": "text"}], "metas": {"default": {"title": "NIHR Palliative and End of Life Care Research, Marie Curie and NIHR Portfolio (2011-2018/19) Dataset", "description": "

This report aims to better understand the joint palliative and end of life care research portfolio of the National Institute for Health and Care Research (NIHR) and Marie Curie. The portfolio analysis brings together data from two UK-based research funders and is intended to inform ongoing strategic efforts to address gaps in the current evidence base.\u00a0


The need for palliative care has been conservatively estimated to be between 69 and 90% of all deaths in high-income countries (Murtagh, 2014; Fantoni et. al., 2023). Yet, palliative and end of life care has been shown to be one of the lowest funded areas of healthcare research in the UK. The UK Clinical Research Collaboration (UKCRC) Health Research

Classification System (HRCS) 2018 dataset shows that only 0.21% of all non-commercial health-related project and programme research funding is spent on research focusing on palliative and end of life care (UKCRC, 2020).


This portfolio analysis draws upon two data sources: a publicly available dataset of health-related research grants or awards active in 2018 (UKCRC, 2020) and created a new dataset (https://nihr.opendatasoft.com/explore/dataset/palliative-and-end-of-life-care/table/) of related research grants and awards from NIHR and Marie Curie (2011 \u2013 2018/19). Analysis found that:

This analysis can be used by funders and researchers to continue to support efforts to fill gaps in the evidence base, and in response both funders have issued further calls for research.


", "theme": ["Multiple Funders Data", "Project Dataset", "Curated Portfolio"], "keyword": ["Marie Curie", "Palliative and End of Life", "Multiple Funders Data"], "license": "Open Government Licence v3.0", "license_url": "http://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/", "language": "en", "metadata_languages": ["en"], "timezone": null, "modified": "2023-11-21T16:03:55.766000+00:00", "modified_updates_on_metadata_change": false, "modified_updates_on_data_change": true, "data_processed": "2023-11-21T16:03:55.766000+00:00", "metadata_processed": "2026-02-23T14:33:09.283000+00:00", "geographic_reference": null, "geographic_reference_auto": false, "territory": null, "geometry_types": null, "bbox": null, "publisher": "DHSC", "references": null, "records_count": 186, "attributions": null, "source_domain": null, "source_domain_title": null, "source_domain_address": null, "source_dataset": null, "shared_catalog": null, "federated": false, "parent_domain": null, "update_frequency": null}}}}