<title>infonihr-open-dataset</title>
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<description>Records for the dataset 'infonihr-open-dataset'</description>
<pubDate>Tue, 29 Oct 2024 12:31:59 +0000</pubDate>
<item>
<title>12/205/36</title>
<link>https://nihr.opendatasoft.com/explore/dataset/infonihr-open-dataset/?q=recordid:307af4c396d3d92d0ca698163f535c938ea0df44</link>
<description>
<![CDATA[ 14/150 (12/205 Very Rare Diseases project number 112195): A randomised trial comparing surgical and radiotherapy strategies enabling rational treatment selection for primary Merkel Cell Carcinoma (MCC), a rare virus and immune-related aggressive skin cancer
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...</description>
<pubDate>Tue, 29 Oct 2024 11:39:38 +0000</pubDate>
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<item>
<title>AI_AWARD02579</title>
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<description>
<![CDATA[ MendelScan - An innovative AI case-finding platform to accelerate the diagnosis of rare diseases using primary care electronic health records
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...</description>
<pubDate>Tue, 29 Oct 2024 11:39:38 +0000</pubDate>
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<item>
<title>COV-LT2-0022</title>
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<description>
<![CDATA[ Percutaneous Auricular Nerve Stimulation for Treating Post-COVID Fatigue (PAuSing-Post-COVID Fatigue)
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...</description>
<pubDate>Tue, 29 Oct 2024 11:39:38 +0000</pubDate>
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<item>
<title>NIHR128996</title>
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<description>
<![CDATA[ Left ventricular assist devices as destination therapy for advanced heart failure
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...</description>
<pubDate>Tue, 29 Oct 2024 11:39:38 +0000</pubDate>
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<item>
<title>NIHR206271</title>
<link>https://nihr.opendatasoft.com/explore/dataset/infonihr-open-dataset/?q=recordid:c8ea28162672f84049f08d05e48f217bc6b923f0</link>
<description>
<![CDATA[ A Work And Health Research Data (AWAHRD) Platform
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...</description>
<pubDate>Tue, 29 Oct 2024 11:39:38 +0000</pubDate>
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<item>
<title>NIHR301614</title>
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<description>
<![CDATA[ Transforming treatment of immune-mediated inflammatory diseases through better trials and evaluations
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...</description>
<pubDate>Tue, 29 Oct 2024 11:39:38 +0000</pubDate>
<guid>https://nihr.opendatasoft.com/explore/dataset/infonihr-open-dataset/?q=recordid:9b07732a37d941b0ad0384e0b6802965b048ffe1</guid>
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<item>
<title>NIHR302309</title>
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<description>
<![CDATA[ How can we Prognosticate airway and Respiratory functiOn decline in Mucopolysaccharidosis type IVA? From bIg data in rare diseases to preciSion medicinE (PROMISE)
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...</description>
<pubDate>Tue, 29 Oct 2024 11:39:38 +0000</pubDate>
<guid>https://nihr.opendatasoft.com/explore/dataset/infonihr-open-dataset/?q=recordid:53047919e24169752f80a53f55c89b3d36e2a5a8</guid>
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<title>NIHR302333</title>
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<description>
<![CDATA[ Evaluating test accuracy without assuming a perfect reference test: application to depression
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...</description>
<pubDate>Tue, 29 Oct 2024 11:39:38 +0000</pubDate>
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<item>
<title>PB-PG-1014-35016</title>
<link>https://nihr.opendatasoft.com/explore/dataset/infonihr-open-dataset/?q=recordid:f16a182fcf1d1bc7401e35e6b4b18ce763ab9403</link>
<description>
<![CDATA[ A study to define patient priorities and preferences when consenting to whole genome sequencing to ensure informed choice
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...</description>
<pubDate>Tue, 29 Oct 2024 11:39:38 +0000</pubDate>
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<item>
<title>RP-PG-1212-20009</title>
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<description>
<![CDATA[ Developing a psychological intervention to improve ultraviolet protection and clinical outcomes in Xeroderma Pigmentosum.
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...</description>
<pubDate>Tue, 29 Oct 2024 11:39:38 +0000</pubDate>
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<item>
<title>12/66/35</title>
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<description>
<![CDATA[ Gene therapy for choroideremia - a Phase II clinical trial
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...</description>
<pubDate>Tue, 29 Oct 2024 11:39:38 +0000</pubDate>
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<title>15/09/04</title>
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<description>
<![CDATA[ (REBALANCE) REview of Behaviour And Lifestyle interventions for severe obesity: AN evidenCE synthesis
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...</description>
<pubDate>Tue, 29 Oct 2024 11:39:38 +0000</pubDate>
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<item>
<title>16/116/82</title>
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<description>
<![CDATA[ CONCORD: CO-ordiNated Care Of Rare Diseases
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...</description>
<pubDate>Tue, 29 Oct 2024 11:39:38 +0000</pubDate>
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<item>
<title>16/137/95</title>
<link>https://nihr.opendatasoft.com/explore/dataset/infonihr-open-dataset/?q=recordid:f2467b43e564de2041f1aa5c7df86632e5ee5452</link>
<description>
<![CDATA[ NIHR Global Health Research Group on Global COPD in Primary Care, University of Birmingham
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...</description>
<pubDate>Tue, 29 Oct 2024 11:39:38 +0000</pubDate>
<guid>https://nihr.opendatasoft.com/explore/dataset/infonihr-open-dataset/?q=recordid:f2467b43e564de2041f1aa5c7df86632e5ee5452</guid>
...</item>
<item>
<title>AI_AWARD02073</title>
<link>https://nihr.opendatasoft.com/explore/dataset/infonihr-open-dataset/?q=recordid:d536069294a38630a8b9099cdad51ccf73245ba8</link>
<description>
<![CDATA[ Development of AI Techniques to Predict Eye Cancer Using Big Longitudinal Data
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...</description>
<pubDate>Tue, 29 Oct 2024 11:39:38 +0000</pubDate>
<guid>https://nihr.opendatasoft.com/explore/dataset/infonihr-open-dataset/?q=recordid:d536069294a38630a8b9099cdad51ccf73245ba8</guid>
...</item>
<item>
<title>ICA-CL-2017-03-007</title>
<link>https://nihr.opendatasoft.com/explore/dataset/infonihr-open-dataset/?q=recordid:16474c26f52ebdeaa15fa3e57eff912806f3d6bc</link>
<description>
<![CDATA[ Developing the utility of multiple breath washout in the paediatric tertiary centre
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...</description>
<pubDate>Tue, 29 Oct 2024 11:39:38 +0000</pubDate>
<guid>https://nihr.opendatasoft.com/explore/dataset/infonihr-open-dataset/?q=recordid:16474c26f52ebdeaa15fa3e57eff912806f3d6bc</guid>
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<title>II-AR-1109-11023</title>
<link>https://nihr.opendatasoft.com/explore/dataset/infonihr-open-dataset/?q=recordid:fe9cbed90c5b6365dc5000a6d4cc50ca949290e0</link>
<description>
<![CDATA[ Head Articulation Control System
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...</description>
<pubDate>Tue, 29 Oct 2024 11:39:38 +0000</pubDate>
<guid>https://nihr.opendatasoft.com/explore/dataset/infonihr-open-dataset/?q=recordid:fe9cbed90c5b6365dc5000a6d4cc50ca949290e0</guid>
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<item>
<title>NIHR135073</title>
<link>https://nihr.opendatasoft.com/explore/dataset/infonihr-open-dataset/?q=recordid:0cce0a65c08ce81adfe54259c3e6ad4aecfcbc0c</link>
<description>
<![CDATA[ Understanding Mechanisms of Thrombosis and Thrombocytopenia in COVID-19 and with SARS-CoV-2 Vaccines
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...</description>
<pubDate>Tue, 29 Oct 2024 11:39:38 +0000</pubDate>
<guid>https://nihr.opendatasoft.com/explore/dataset/infonihr-open-dataset/?q=recordid:0cce0a65c08ce81adfe54259c3e6ad4aecfcbc0c</guid>
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<item>
<title>NIHR200784</title>
<link>https://nihr.opendatasoft.com/explore/dataset/infonihr-open-dataset/?q=recordid:265792d9229c6be9ffb068e2a6f48954cf9c5ffe</link>
<description>
<![CDATA[ Evaluating Chronic Pain in Autosomal Dominant Polycystic Kidney Disease using a Patient-Centred Approach to Data Collection and Synthesis: A National Prospective Observational Study (EASE-PKD)
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...</description>
<pubDate>Tue, 29 Oct 2024 11:39:38 +0000</pubDate>
<guid>https://nihr.opendatasoft.com/explore/dataset/infonihr-open-dataset/?q=recordid:265792d9229c6be9ffb068e2a6f48954cf9c5ffe</guid>
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<item>
<title>NIHR300099</title>
<link>https://nihr.opendatasoft.com/explore/dataset/infonihr-open-dataset/?q=recordid:461f1e8493525419095ceff39874f4e9e6c97092</link>
<description>
<![CDATA[ Delivering genomic sequencing in clinical practice: a patient-centred evaluation of the new NHS Genomic Medicine Service
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...</description>
<pubDate>Tue, 29 Oct 2024 11:39:38 +0000</pubDate>
<guid>https://nihr.opendatasoft.com/explore/dataset/infonihr-open-dataset/?q=recordid:461f1e8493525419095ceff39874f4e9e6c97092</guid>
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